Christmas came early for Jake and Mason, two Shirley youngsters, who both suffer from a severe neurological disorder called Dravet Syndrome. The condition is life limiting and causes prolonged recurrent epileptic seizures with a wide spectrum of related problems such as learning difficulties and ataxia.
Shirley Lions first became aware of the boys when local pub Woodman’s Rest launched an appeal earlier this year to send them on a special holiday with their mother Meggie. The Lions contributed to the fund but when a health issue meant that the arrangements had to be curtailed to a UK holiday some money was left over so the Lions discussed with Meggie how best to spend the balance.
It was decided that an iPad would help both boys with entertainment and with learning. They already use various apps designed to help improve co-ordination and speech on their mother’s smartphone but this is not always practical, particularly on their frequent visits to hospital.
The Lions were also fortunate to have a similar used Android device donated by a member of the club, which was also passed on to the boys.
Mother Meggie said “Jake and Mason are so excited, they can’t wait to get started. It will be wonderful for keeping them entertained in the car too. I’m so grateful to Shirley Lions for their generosity”